In 2000, I started a website to document the journey of my first-born who was born with autism.
I wanted to speak about the time before he was diagnosed, the time when he got diagnosed, what we did, how we reacted and what it meant for him.
I wanted to document his journey and mine at a time there was so little about autism and therapies for young children, especially in French.
I created a website and called it “Terouma“, which is the French spelling of a Hebrew word meaning « Gifts » or « Offerings » The meaning in Hebrew implies the idea of separation and elevation. Life had given our family a separate fate because of autism but it had also offered us an opportunity for incredible growth.
Hence the name Terouma or Terumah for that website.
Each week, everywhere in the world, the Jewish people read the same portion of the Torah, the Five Books of Moses in the Hebrew Bible. The Torah is divided into fifty-four portions that are called by the first relevant word of the text: this week we are reading the portion called Terumah.
In this portion, the Israelites are commanded to bring offerings to build the tabernacle, with a specific list of items that must be gifted to that purpose.
Gold, silver and copper; blue, purple and red-dyed wool; flax, goat hair, animal skins, wood, olive oil, spices, and gems.
I have always been very fond of lists, all sorts of list. That list gives me joy each time I read it! I can feel the divine presence in each item, so precious, so special.
My son has so many rituals that mean something for him only, and he has not been able to share their meaning in a clear manner, but I look at them the same way I look at the list of items brought to build the mishkan, the holy tabernacle.
Each child is unique. Each story of autism is unique. What I have written in the past, what I write today, and might write in the future always reflect only my views.
Because of this extra-ordinary son with no intelligible words or explanation on his modus operandi, I am the one who had to build a special space, not only for him and his family but hopefully for others who might find our perspective inspiring.
Please, share your stories too!